How are people coping with the crisis? Let's support each-other

Are you well?
How are you coping with staying at home?
Do you have any symptoms?
Are you being helped?
Do you need help?

This is a free to share very helpful guide for dealing with anxiety amid uncertainty

There are more resources down thread
 

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Margot

Administrator
Advice from the Royal College of Occupational Therapists about social distancing
Staying well when social distancing Advice to support people who are undertaking social distancing and for families to support their children while schools are closed
 

Margot

Administrator
Here are some tips to provide structure to the time at home:
  • Keep a good self care routine: washing/bathing/grooming/housekeeping
  • Create a new routine – do a planned task in the morning, a walk in the afternoon and a relaxation/entertainment activity in the evening
  • Use time productively practice your skills in a new way, learn a new skill, try a new activity
  • Invest in wellbeing – doing something enjoyable every day
  • Keep in touch with people on Skype, social media and online

Here are a few resources we created:


The weekly activity planner

The daily timetable

The weekly menu planner
 

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azealia84

New member
I am coping extremely well to be honest, I'm the happiest I've been in a long time. I am very fortunate to have a south-facing garden and spend a lot of my time gardening and generally doing my work sat outside. My dog is all the company I could wish for, and love being at home with her all the time and getting out for our morning walkies every day.

I do miss my partner - he lives a 2 minute walk away, we have been together for 8 years but live apart because we both like our space too much. I'm also extremely phobic of catching the virus, and get very worked up when I go out and people aren't social distancing. My partner has been doing my shopping for me, because he is amazing (and he drives and I don't) :)

I suffer from perennial rhinitis and laryngophalanxial reflux disease which causes me to have sore throat and horseness of voice (complete loss of voice on bad days) and breathlessness, so I genuinely don't know if I've had the virus or not. I live in constant fear of it.
 

Dai

Member
this was posted on Facebook people may life to act on it ? Paulette asked me to post on autism bucks - but I don't have access.
AAC CHALLENGE (full version):

Okay, talkies, I have a dare for you. I'm not kidding. If you are a full-time fluent speaker, I'm actually asking you to do this, even though it is work. Feel free to spread it out over multiple days. Some of you have already started -- thanks! (And note: you will learn a lot more if you read each step, do it, and only THEN read the next step.)

STEP 1:

Take 128 index cards and a pen. Set aside a pad of paper for later. (None of these things is intrinsic to the task. Feel free to substitute alternate ways of writing if needed for disability reasons. But if you can use index cards, that will help you grasp my point.)

STEP 2:

Write out as many of the really important words/phrases/sentences you may want to say as you can, one on each card, without going over 128. You'll be able to combine things. So if you have a card for "I'm hungry" and a card for "not," you don't need another card for "I'm not hungry." You can already make that message. You don't have to use all 128 cards, but you can't use more.

STEP 3:

Pick a number between 1 and 5. Write it down. You'll need it later.

STEP 4:

Contemplate how many options 128 is. I mean, that's a stack of cards you have in your hand, right? It could be hard even to find the right card when you go looking.

STEP 5:

It's too late to go back and change anything now, but ask yourself if you forgot anything.

STEP 6:

Using only the messages you have written on your cards, and based on the number you selected in step 3, write out one of the following:

1 - a love letter to someone you want to spend your life with
2 - a crime report explaining how someone hurt you and giving enough evidence that the crime can be solved and prosecuted
3 - a eulogy for a parent or other central figure in your life
4 - an essay about the best and worst things that happened to you today and why they matter
5 - an account of your dreams for your future

Do your best. Do your very, very best.

STEP 7:

Put what you have just written aside. Go for a walk. Shake out your body. Have some water. Notice how you felt writing that. Notice how you feel afterward. Take a break for a day or two. This is hard stuff.

STEP 8:

Give what you wrote to a friend. Tell them a person with a disability wrote it, but don't tell them more than that. Ask your friend to read it and give you an honest assessment of this person. Listen carefully.

STEP 9:

Make your own adventure.
 
I was doing as well as normal until an incident at work. Now I'm part time e off sick. I miss games club.

Occasional friction with family as we have 2 grown up children now stranded with us. I bet that happens in any family though. Still enjoying walks with the dog.
 

Dai

Member
Paulette is spot on with one of her posts today - I am in a battle between the new me and the old me. The long spells of little to do with my time, drag me backwards while I plan what I will do when lock down ends - I have applied to the bank for a loan to kick start my business off to a new growth plan, and if that is approved I will have lots on my plate. It must be similar to waiting for the weather to change before the launch of D Day. Past thoughts keep dragging me back.
 

Dai

Member
I like this joke sent to me by friends: " If you get fined for breaking lock down rules, apply for a refund under the new law of Cummings & Goings. " .....Keep smiling folks!
 

Dai

Member
Lol

Did anyone had to explain their autism as the reason to be out during the lockdown?
Good idea - I must remember to put my Autism membership card back in my wallet....thanks for the reminder....fortunately though no one has stopped me yet. Having ADHD means I don't stay long enough in one particular location! I could never lie on the beach.....
 

Margot

Administrator

ProfessorWorm

Active member
I’m currently a mess medically. My insomnia is back with a vengeance, my chronic nausea has flared up horrifically, and I think I dislocated my shoulder several times since March. I wound up having to recruit family to help reduce it since my local hospital has (had?) covid patients.
I’m coping reasonably well although half my family is about to be driven insane by my stimming (misphonia and clicky stims do not make for familial harmony). Online school is a misery I never wish to experience again, but baking and good books make the boredom and monotony bearable. I’ve found avoiding the news and focusing on only the current moment and the sensory input I’m experiencing helps reduce my anxiety about the future for a little bit.
 
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I avoid the news as well. its like self harm.

The covid 19 changes has had a huge effect on my life as all my day services and routines have been physically stopped,including going to the local shop once a day for a can of drink. relieing On carers they have refused to take me out to the shops,only allowing two shop visits a week,it’s triggered a lot of meltdowns and made my depression worse.

One of my day services,a UK organisation called Venture Arts, which is an art studio for people with LD (a lot of us are autistic as well) is giving me zoom sessions with my photography tutor,they actually sent me an iPad on loan so I coud use it for the zoom camera and can use my iPad for my Proloquo2go as otherwise the sessions woud have been impossible.
my mum was diagnosed with several quite bad cancers around the same time the UK lockdown had just started so the extra iPad means I can communicate with her to.

i am hoping To do voluntary work at a special primary school for kids with all levels of autism when all this is over but I’m not sure how that will work out with being Non verbal and in a (manual) wheel chair.