“Nothing About Us Without Us” signifies the essential involvement of autistic individuals in all discussions about autism. When decisions are made without our input, the outcomes are often detrimental, failing to improve our lives. Inclusive decision-making ensures that policies are beneficial and promote understanding and support for the autistic community.

This page highlights NDSA’s perspectives on various autism-related topics. You can explore each topic in detail below.

Neurodiversity means that every brain is unique, and there is no “normal” brain. Everyone has strengths and areas where they need support. The neurodiversity movement advocates for the acceptance and inclusion of people with brain-based differences such as autism, ADHD, Dyslexia, Dyspraxia, Tourette’s, learning disabilities, and mental health conditions. It opposes efforts to “cure” or eradicate autism, emphasizing that autistic individuals should be allowed to exist and thrive with the necessary support and reasonable adjustments. NDSA supports these principles, promoting celebration and inclusion of autistic individuals.

A person is autistic if their neurotype is distinct from the majority, characterised by differences in social communication, sensory processing and attention. Autistic people are a social minority that can be disabled by the society designed for neurotypical people.

People are disabled by systems, structures and attitudes in society and not but their conditions as such. The efforts should be focussed on modifying the environment, not the person.

Autism + Environment = Outcome

(Luke Beardon)

Autism is a developmental difference affecting the way autistic people learn, communicate, and perceive the world around them. This difference is disabling in society designed for neurotypical people. Disability is a natural part of human diversity, yet society often excludes disabled people by trying to cure them or make them “less disabled.” The disability rights movement, including NDSA, advocates for changes in society to accommodate disabilities and remove barriers instead of trying to change disabled people. The focus should be on ensuring that people with disabilities have access to the support and resources they need to thrive, rather than on attempting to fix or diminish their disabilities.

Self-advocacy involves taking charge of our lives by making personal choices and influencing society’s views and policies about disabilities. It includes deciding on daily activities and broader community actions. Self-advocacy is crucial for ensuring that autistic individuals are included in all discussions about autism.

Every disabled person can be a self-advocate, regardless of their level of disability. Simple actions, like saying “No,” are forms of self-advocacy. Everyone deserves the tools to advocate for themselves and make their own choices without their disability being a barrier.

Autistic individuals are the true experts on autism, as we live with it every day. We understand the challenges we face and have practical solutions. Despite this, some non-autistic “autism experts” create policies without our input, often leading to ineffective outcomes. It is crucial for autistic people to be involved in policy-making to ensure our needs are met and our voices are heard. Our insights are invaluable, and there should be no exceptions to our participation in the national or local dialogue about autism.

At NDSA, we avoid using labels like “high-functioning” and “low-functioning” to describe autistic individuals. These labels are misleading and unhelpful because they oversimplify the diverse abilities and needs of autistic people. Everyone has strengths and areas where they need support. Functioning labels can prevent “high-functioning” individuals from getting the help they need and restrict “low-functioning” individuals’ autonomy. Instead, we focus on recognizing each person as an individual, acknowledging their unique skills and support needs to ensure they receive appropriate assistance.

Diagnosis is not a prerequisite for being part of the autistic community. Many autistic individuals, especially those from ethnic minorities, women and girls, trans and nonbinary people, and those diagnosed in adulthood, face barriers to obtaining an official diagnosis. The process can be costly and time-consuming, and some people may choose not to seek a diagnosis. Self-identification is equally valid. At NDSA, we welcome all autistic individuals, regardless of whether they have an official diagnosis.

There are many fraudulent treatments claiming to cure autism, using methods like chelation, bleach, restrictive diets, and ineffective medications. These so-called cures can cause real harm to autistic individuals and exploit families financially. NDSA strongly opposes these practices. Most self-advocates believe that autism does not need to be cured. Instead of focusing on impossible and unwanted cures, efforts should be directed towards providing the necessary support for autistic people to lead fulfilling lives.

Therapies like physiotherapy, speech therapy, occupational therapy, and augmentative and alternative communication (AAC) can be beneficial for autistic people. These therapies should be more accessible. However, some therapies aim to make autistic people seem “indistinguishable” or “less autistic”, with Applied Behavioural Analysis (ABA) being the most common.

ABA uses rewards and punishments to train autistic people to act non-autistic, which can be harmful and fails to teach necessary life skills. ABA is a form of conversion therapy, a compliance training that is perceived to be emotionally abusive and traumatic for autistic people. There is growing evidence* that it causes PTSD (post-traumatic stress disorder). Autistic adults who were subjected to ABA as children campaign to ban it. Conversion therapies, such as gay conversion therapy has been banned in many countries around the world.

NDSA advocates for therapies that support autistic people in achieving their own goals rather than conforming to non-autistic standards. Effective therapies focus on helping autistic individuals identify and achieve their personal goals.

* https://bit.ly/4eQ4N1F and https://bit.ly/3XRGs5u

Work offers validation, satisfaction, fulfilment, confidence, and social opportunities that are essential for autistic individuals. However, the employment rate for autistic people is the lowest among all disability groups, standing at 26%, compared to 80% for non-disabled people and 50% for disabled people overall, according to the Office of National Statistics. Despite 77% of unemployed autistic individuals wanting to work and 58% seeking assistance to get into employment, they often do not receive the necessary support. Consequently, many end up in unsuitable jobs, leading to burnout. We advocate for employment support across all ability levels to help autistic individuals define and achieve their desired careers sustainably.

In the UK, autistic students have the right to appropriate education and support tailored to their needs. Schools are legally obligated to provide reasonable adjustments under the Equality Act 2010, ensuring that autistic pupils can access the curriculum and participate fully in school life. This includes individualized support plans, specialist teaching, and resources to aid learning and social development. Additionally, the Special Educational Needs and Disability (SEND) Code of Practice outlines the responsibilities of educational institutions to identify, assess, and meet the needs of autistic students, promoting an inclusive and supportive educational environment.

Nevertheless, accessing this support proves to be a battle with families having to go through multiple hurdles including SEND Tribunals. Too many autistic children are excluded from school because schools are not able to meet the needs. A fast-growing number of autistic children develop emotionally based school refusal due to them not being able to cope at school without the appropriate support. The current practice required the child to fail before appropriate provision is put in place. This is wrong. Autistic children should receive the diagnosis and the right support at the earliest opportunity. Schools and Local Authorities should be appropriately funded to deliver that.

Autistic individuals have historically been thought to be predominantly male, but many women, girls, and non-binary people are also on the spectrum. Outdated stereotypes hinder recognition and support for autistic women and girls. They often receive late diagnoses or are misdiagnosed due to masking behaviours and differences in autistic traits. Diagnostic criteria are modelled on male presentation of autism. These traits, such as reading books rather than fascination with trains and focused interests, might resemble typical behaviours in non-autistic women and girls. Healthcare professionals may miss these signs, leading to misdiagnoses. Accurate diagnosis and support are crucial for autistic women and girls to understand themselves and access necessary resources.

Autistic people are over-represented among LGBTQ+ communities and our own survey of 330 autistic people shows that about a third identify as LGBTQ+. The competence of autistic people to recognise their own sexuality should not be challenged. Autistic people should have access to health services that enable them to live fully their gender identity.

Autistic people are under-diagnosed in Black, Asian, and minority ethnic (BAME) communities, making it harder for them to receive appropriate support. Understanding these experiences is crucial to creating a society that serves all autistic people. Decision-makers, service providers, and community groups must listen to BAME autistic individuals and their families to offer culturally appropriate support. The National Autistic Society has done some research in this community. Key issues identified include:

• Difficulty obtaining diagnoses due to lower autism awareness and misinterpretations of behaviour.
• Barriers to accessing services, including language barriers and professional jargon.
• Communication issues with professionals, including lack of cultural understanding.
• Limited community awareness and support, with some communities stigmatizing disability.
• Denial and isolation, with families sometimes hiding autism due to shame or privacy concerns.

NDSA is reaching out to other organisations working with BAME groups to build awareness and acceptance of autism.

Autistic individuals face significant health inequalities, with a high prevalence of physical and mental health issues. Around 70% experience mental health problems, and there is a 66% high incidence of suicidal ideation and attempts (35%), particularly among those without intellectual disabilities, who have a 16-year shorter life expectancy with suicide being the leading cause of early death. Epilepsy is a leading cause of death for autistic individuals with intellectual disabilities who experience 30 years shorter life expectancy.

These health inequalities are largely due to minority stress and barriers in accessing healthcare, such as the need to make phone calls and inaccessible medical environments. NDSA trains professionals to make healthcare more accessible and autistic individuals to understand their rights and request adjustments through for example the use of Health Passports. We also provide a framework for auditing the accessibility of GP practices.

We promote use of identity first non-pathologizing language e.g. ‘an autistic person’ and in referring to specific individuals follow individual preferences. The language used to describe a group of people directly influences society’s perception of them which, in turn, influences how a person feels about themselves. It is time to reject language rooted in deficit-based thinking.

Being autistic is a fundamental part of a person’s identity; separating autism from the personality is impossible. There is no version of an individual that exists “without autism.” As one autistic adult stated, “I don’t wish to be cured from being myself.” Therefore, the overwhelming majority of autistic people prefer being called ‘autistic’, not ‘with autism.’ This preference is known as using “identity-first” language.

The language used to describe a group of people directly influences society’s perception of them which, in turn, influences how a person feels about themselves. It is time to reject language rooted in deficit-based thinking.

Being autistic is a fundamental part of a person’s identity; separating autism from the personality is impossible. There is no version of an individual that exists “without autism.” As one autistic adult stated, “I don’t wish to be cured from being myself.” Therefore, the overwhelming majority of autistic people prefer being called autistic, not “with autism”. This preference is known as using “identity-first” language.

Person-first language, such as “person with autism”, implies that autism is a negative trait, akin to an illness that needs to be cured. It suggests that being autistic is something separate from the person’s identity. Furthermore, terms like “disorder,” “deficit,” or even “condition” can be seen as inaccurate and harmful, potentially affecting an individual’s self-worth. The need to specify that an autistic person is still a person underscores a stigma that should not exist. Instead, many autistic people prefer “identity-first” language, which respects autism as an integral part of who they are.

Autistic people have historically felt not being listened to. Using person first language is where it continues to happen.

Ableist pathologising language	Alternative
Healthy	Non-autistic
Symptoms	Traits, behaviours
Deficits	Differences, which also involve strengths
Special interests	Passionate interests
Challenging behaviour/problem behaviour	Distress behaviours
Medicalized/deficit-based language	Description of traits
High/low functioning	Describe specific strengths and needs, and their variability across settings
‘At risk’ of autism	Higher likelihood
Burden of/suffering from autism	Impact of needs not being met
Co-morbid	Co-occurring
Treatment	Support

Ableist discourses are ways of discussing autism that reflect and/or contribute to dehumanization, oppression, or marginalization of autistic people. It is important to recognise and challenge them.

Ableist discourses	Alternative
Discussions about economic impacts of autism that situate costs in the existence of autistic people, or compare the costs to those of potentially fatal diseases/conditions such as cancer or stroke	Situating costs in society’s systemic failure to accommodate autistic people and that recognize the people most affected by oppression due to this failure are autistic people themselves (not “taxpayers” )
Interpretations of all group differences as evidence of autistic deficits	Autistic people have relative strengths over nonautistic people or that differences between groups are value-neutral unless specifically demonstrated otherwise
Cure/recovery/“optimal outcome” rhetoric	Discussions focusing on quality-of-life outcomes that prioritize what autistic people want for themselves
Prioritizing “passing” as nonautistic (e.g., some “social skills” training) at the expense of mental health and well-being.	Prioritizing mental health and well-being, which can include embracing autistic identities
Autism as a puzzle	Autism as part of neurodiversity
Autism as an epidemic	Autism as increasingly recognized/diagnosed
Suffering from autism	Suffering from ableism and discrimination
Autistic people being a burden	Ableist attitudes dehumanising autistic people